Well, I don’t have ALS but it seems that what I have been diagnosed with is very similar to a lot of brain disorders. Parkinsons, MSA. shy-drager; all make you a prisoner of what is left of your life.
If you have some time, watch the 60 minutes show that talks about stem cells and some ALS patients who went undercover to expose a few of those who don’t mind preying on those who have become desperate to try to live again while they wait for the inevitable. In this story, to give you some idea how I talk now, it’s not much better than Michael Martin. http://www.cbsnews.com/stories/1998/07/08/60minutes/main13502.shtml
If you can’t access this story, it was originally aired on 4/18/10.
Thanks be to one and all.
NOTE TO SELF: Work on some more to verify websitr.
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